Quality-of-Life Tools

Steven E. Swift

The following table is a short description of the various quality-of-life (QOL) tools for assessing urinary incontinence and pelvic organ prolapse. While it is extensive it may not be complete, as new tools are constantly being developed. The commonly used tools are the King’s Health Questionnaire, IIQ, UDI, PFDI, and PDIQ. The King’s Health Questionnaire and scoring sheet follow the list below. The others can be found in their entirety in Chapter 3.

TABLE 1 Description of Condition-Specific Health-Related Quality-of-Life and Symptom Severity Instruments

Name of Instrument	Target Population/Condition	Items, n	Subscales
Health-Related Quality-of-Life Tools for Urinary Incontinence
CONTILIFE: a quality-of-life questionnaire for urinary incontinence (1)	Stress urinary incontinence	28	Daily activities, effort activities, self-image, emotional consequences, sexuality, well-being, global score
Incontinence Impact Questionnaire (2)	Urinary incontinence	30	Physical activity, travel, social, emotional
Incontinence Impact Questionnaire-Revised (3)	Urinary incontinence	30	Physical activity, travel, social, emotional, embarrassment
Incontinence Impact Questionnaire-Short Form (4)	Urinary incontinence	7	Not applicable
Incontinence Quality-of-life Questionnaire (5)	Urinary incontinence	22	Avoidance and limiting behaviors, psychosocial, social embarrassment
Incontinence Stress (6)	Urinary incontinence	20	Depressive, aesthetic/somatic, social
Overactive Bladder Questionnaire (7)	Continent and incontinent overactive bladder	33	Symptom bother, coping, concern, social interaction, sleep
Quality-of-life Questionnaire for Urinary Urge Incontinence (8)	Urge urinary incontinence	24	Activities, emotional, impact self-image, sleep, well-being
Health-Related Quality-of-Life Tools for Urinary Incontinence
Symptom Impact Index for Stress Incontinence in Women (9)	Stress urinary incontinence	3	Not applicable
Urge Impact Scale (10)	Urinary incontinence	24	Psychological burden, perception of personal control, self-concept
Urge Incontinence Impact Questionnaire (11)	Mixed urinary incontinence, urge urinary incontinence	32	Travel, activities, physical activities, feelings, relationships, sexual function, nighttime bladder control
Urinary Incontinence Handicap Inventory (12)	Elderly women, UI caused be detrusor activity	17	Not applicable
Urinary Incontinence Severity Score (13)	Urinary incontinence	10	Not applicable
York Incontinence Perceptions Scale (14)	Urinary incontinence	8	Not applicable
Symptom Severity Questionnaires for Urinary Incontinence
Sandvik Incontinence Severity Index (15)	Urinary incontinence	2	Not Applicable
Urogenital Distress Inventory (2)	Urinary incontinence	19	Irritative symptoms, obstructive/ discomfort symptoms, stress symptoms
Urogenital Distress Inventory-short form (4)	Urinary incontinence	6	Irritative symptoms, obstructive/discomfort symptoms, stress symptoms
International Consultation on Incontinence Questionnaire (16)	Urinary incontinence, nocturia, naginal symptoms, bowel symptoms, neurogenic bladder, overactive bladder	Series of 16 modules	Irritative symptoms, obstructive symptoms, sexual symptoms, nocturia, stress and urge incontinence symptoms, fecal symptoms of incontinence and constipation.
Questionnaires That Cover Both Symptom Severity and Health-Related Quality-of-Life for Urinary Incontinence
King’s Health Questionnaire (17)	Urinary incontinence	21	Role limitations, physical limitations, social limitations, personal limitations, emotional problems, sleep/energy disturbance, severity (coping) measures, symptom severity, incontinence impact (single item), general health perception (single item)
Health-Related Quality-of-Life Questionnaires for Pelvic Organ Prolapse
Pelvic Floor Disorder Impact Questionnaire (18)	Pelvic organ prolapse	46	3 subsets; one each for urinary, prolapse, and colorectal-anal. Each covers travel, social, emotional, and physical activity.
Pelvic Floor Disorder Impact Questionnaire-short form (19)	Pelvic organ prolapse	7	Not applicable
Symptom Severity Questionnaires for Pelvic Organ Prolapse
Pelvic Floor Distress Inventory (17)	Pelvic organ prolapse	93	3 subsets; one each for urinary symptoms (obstructive, irritative, stress incontinence), prolapse (general, anterior, posterior) symptoms, and colorectal-anal symptoms (obstructive, incontinence, pain/irritation, rectal prolapse)
Pelvic Floor Distress Inventory-short form (18)	Pelvic organ prolapse	20	Not applicable
Questionnaires That Cover Both Symptom Severity and Health-Related Quality-of-Life for Pelvic Organ Prolapse
Prolapse Quality-of-Life Questionnaire (20)	Pelvic organ prolapse	38	Role limitations, physical/social limitations, personal relationships, emotions, sleep/energy, coping measures. Symptom severity for urinary, prolapse, and anal rectal symptoms.
Sexual Function Questionnaires for Prolapse and Urinary Incontinence
Pelvic Organ Prolapse and Incontinence Sexual Function Questionnaire (21)	Pelvic organ prolapse and/or urinary incontinence	31	Behavioral/emotive, physical, partner-related
Epidemiology Questionnaires for Pelvic Organ Prolapse, Urinary Incontinence, and Fecal Incontinence
Epidemiology of prolapse and incontinence questionnaire (22)	Pelvic organ prolapse, overactive bladder, stress urinary incontinence, and fecal incontinence	49	Pelvic organ prolapse, stress urinary incontinence, overactive bladder, fecal incontinence, and impact on quality of life for each.