Data between 2014 and 2015
Number of patients in the Registry
Number of inhabitants according to ISTAT
Prevalence every 10,000
Lombardy Region Registry, 2014
341 patients
9,032,554 inhabitants
3.7/100,000
Lombardy Region Registry, 2015
380 patients
10,008,349 inhabitants
3.8/100,000
Piedmont Region Registry, 2015
116 patients
4,404,246 inhabitants
2.6/100,000
Tuscany Region Registry, 2015
91 patients
3,744,398 inhabitants
2.4/100,000
Marche Region Registry, 2015
77 patients
1,543,752 inhabitants
5/100,000
Lazio Region Registry, 2014
289 patients
5,892,425 inhabitants
4.9/100,000
Lazio Region Registry, 2015
305 patients
5,888,472 inhabitants
5.1/100,000
National Registry, 2013–2014
1192 patients
60,795,612 inhabitants
1.9/100,000
National Registry, 2015–2016
Data collected under evaluation
Data collected under evaluation
Conclusions
In spite of a certain degree of statistical error, these results indicate that BPS/IC is not a common occurrence in the Italian population. It is widely agreed that a disease registry is a valuable source of information both for epidemiology and for public health. Moreover, it helps estimate the diagnostic delay, one of the key research areas related to this type of diseases. In the next 2 years, it will be interesting to evaluate the prevalence pattern of BPS/IC in Italy, in view of a comparison between Italian data and other European registries.